We are proud to partner with the Children’s Tumor Foundation and other nonprofits on several projects through the NF Collective. One such project is informing NF patients and their families about the NF Registry. People who join the registry get access to the latest discoveries about NF1, NF2, or schwannomatosis, which helps you and your family find the best possible care.
You will have access to:
Clinical trials and research studies relevant to you or your child
Updates to NF care recommendations
Research announcements and news
Surveys designed to get patient input on key NF challenges
Educational materials specific to you
Resources to help you on your path with NF
Take action to stay informed, improve care, and advance NF research.